Lewis Schofield’s Critically-Acclaimed, “Viral” YouTube Video
Written by admin2 on February 13th, 2009Filed under: Regular Contributors, Lewis Schofield, Themes, Auties & Aspies, QuIrked Kids, Irked Videos
Lewis Schofield has a new video up at YouTube. And it’s about his life with Myasthenia Gravis.
Here’s what Connie Foggles, author of the health blog My Chronic Life, had to say about it:
I came across this video from my Google Alert set to Myasthenia Gravis. I am amazed at the way that this young man who is only 13 is able to describe what MG is all about. Lewis Schofield, who also has Asperger Syndrome, a form of Autism, was diagnosed with MG in April of 2008. He was most likely 12. With his ability to make this video to educate people about this disease and to inspire people at the same time, I bet that there are offers for marketing jobs coming his way. I admire him. Plus he makes me really think that I need to be grateful for what I have. How can I complain after seeing what he is going through?
Irked Magazine proudly presents Tell Me What Time It Is: My Life With Myasthenia Gravis—a very brave and very powerful short-movie by the multi multi multi-talented Lewis Schofield. Our favourite part is found at 2:42 in the video and runs until 2:56. Talk about marketing and promotion!!
[*UPDATED: Due to re-editing, the favourite part that used to be found at 2:42 in the video and ran until 2:56 now starts at 2:31 and runs until 2:45. ]
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I’m Lewis “Codeboy” Schofield’s mom as most of you know. I’d like to thank Sacha for promoting Lewis’ video “Tell Me What Time It Is: My Life With Myasthenia Gravis.”
Lewis is all about breaking down barriers so ‘bellcurve’ people (as he calls them) can better understand ‘otherwise gifted’ people (again, a Lewis term).
Just when you think that it must be the worst thing ever for anyone to receive a diagnosis, Lewis always finds a way to make it a blessing in disguise.
This weekend, he’s in for IVIg from Valentine’s Day (Saturday) through to Family Day (Monday). Instead of looking at this as a lost weekend of celebration, he smiles and says it’s a great excuse for spending quality time with his mom without interruptions and judgments from other people who might think it’s weird for a 13-year-old to be hanging out so much with his mom.
Thanks again for uploading this to Irked Magazine and thanks to those of you who not only watch the video but who pass along the link so others can watch (and learn) as well.
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As one of those adults with MG and recieving IVIG every three weeks I just want to say awesome job. Do you belong to any of the MG sites online? There are a few with Yahoo such as Bette’s MG that I belong to that may give you a little more insight.
sincerely,
JoAnn
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Lewis is truly a remarkable boy! I was one of the ones to pass along his video. I wish the best for you and please know that the Myasthenia Gravis Foundation is here if you need information or support.
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Even with the re-editing, the section Irked Magazine likes best was left untouched and remains as long as it was in the first version. That’s Lewis!