The website jaylenschallenge.org is the dream of a wonderful little 8-year-old boy named Jaylen Arnold. Jaylen suffers from Tourette Syndrome. He wants to educate people about bullying, bringing attention to the difficulties he faces in his day to day living. He hopes to make you laugh, make you cry, but most importantly make you aware that those with disabilities are not only normal—but incredibly special people. With your help and support he can spread the word and teach people to help…not bully.
Back in November, we highlighted an extraordinary documentary called Autism: the Musical. The film introduced Neal, Lexi, Henry, Adam and Wyatt—five autistic kids who, along with their parents, take part in a groundbreaking theatrical workshop as part of The Miracle Project. Suffice it to say, the children “defied diagnosed expectations”…by writing, rehearsing and performing their own full-length musical!
Well, Autism: The Musical and The Miracle Project caught the attention of quite a few celebrities, and some Hollywood heavyweights have rolled up their sleeves to get involved.
Here’s what Alicia Sparks, author of the Psych Central blog “Celebrity Psychings,” had to say about the film Loving Lampposts:
Todd Drezner, a Columbia University Film MFA graduate, is currently making Loving Lampposts, a film FilmStew.com says will “include a close-up look at ‘neurodiversity,’ a movement which posits that curing autism is something that is neither possible nor desirable.” As the father of a son diagnosed with autism spectrum disorder, Drezner takes special interest in the subject and the film will reportedly feature celebrity advocates like Jenny McCarthy. (For those who’re interested, Loving Lampposts is Drezner’s directorial debut, but he also worked as an editor on I Paint Pictures, a 2007 documentary about a New York street artist with schizophrenia.)
Lewis Schofield has a new video up at YouTube. And it’s about his life with Myasthenia Gravis.
Here’s what Connie Foggles, author of the health blog My Chronic Life, had to say about it:
I came across this video from my Google Alert set to Myasthenia Gravis. I am amazed at the way that this young man who is only 13 is able to describe what MG is all about. Lewis Schofield, who also has Asperger Syndrome, a form of Autism, was diagnosed with MG in April of 2008. He was most likely 12. With his ability to make this video to educate people about this disease and to inspire people at the same time, I bet that there are offers for marketing jobs coming his way. I admire him. Plus he makes me really think that I need to be grateful for what I have. How can I complain after seeing what he is going through?
Irked Magazine proudly presents Tell Me What Time It Is: My Life With Myasthenia Gravis—a very brave and very powerful short-movie by the multi multi multi-talented Lewis Schofield. Our favourite part is found at 2:42 in the video and runs until 2:56. Talk about marketing and promotion!!
[*UPDATED: Due to re-editing, the favourite part that used to be found at 2:42 in the video and ran until 2:56 now starts at 2:31 and runs until 2:45. ]