disability culture

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“Shameless: The Art of Disability” – iconic feature-length documentary is now FREE!

Thursday, December 17th, 2009
Filed under: Regular ContributorsDavid Roche, Irked Videos

This is something you already know if you’re on David Roche’s mailing list.

Hello friends: ”Shameless: The Art of Disability” is now available to view (free) at the National Film Board of Canada website! This iconic feature-length documentary about disability and creativity is a National Film Board of Canada production, directed by the noted documentarian, Bonnie Klein and released in 2008. It focuses on the stories and creative processes of four artistic people with disabilities, including myself, Persimmon Blackbridge, Catherine Frazee and Geoff McMurchy (and of course Bonnie herself). Enjoy!

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Quoting the NFB.ca film synopsis:

Art and activism are the starting point for a funny and intimate portrait of five surprising individuals with diverse disabilities. Packed with humour and raw energy, this film follows the gang of five from B.C. to Nova Scotia as they create and present their own images of their disabilities.

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Watch the feature-length documentary now:

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And please buy David’s phenomenal book:


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More Jaylen Arnold!

Thursday, December 17th, 2009
Filed under: Campaign WatchIrked Videos, Interviews, Auties & Aspies, QuIrked Kids

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Sue Scheff recently interviewed the great Jaylen Arnold for examiner.com.  Their conversation was so engaging (and so important) that we are reprinting it here in its entirety.

Enjoy!

Click to continue »

FEATURED ARTICLE: “Social media – a barrier or tool for inclusion?”

Thursday, December 17th, 2009
Filed under: Campaign Watch

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“Social media has the potential to provide an array of new opportunities to people with disabilties. But when it comes to sites such as Twitter, more needs to be done…”

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IMPORTANT OPEN LETTER: Dear members of the American blind community – your feedback is needed

Thursday, December 17th, 2009
Filed under: ThemesBlind VisionariesCampaign Watch

Quoting Lainey Feingold and Linda Dardarian, U.S.-based disability and civil rights lawyers:

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“Dear members of the blind community:

As we approach the end of the year, we are asking for your help in making sure the settlement agreements negotiated by ACB and its affiliates are working well. Feedback from individuals about Talking ATMs, accessible credit reports, tactile Point of Sale devices, accessible pedestrian signals, and accessible websites is critical to the success of Structured negotiations. Please take a minute to read this email and send us feedback on any of the issues raised here. We can be reached through Lainey’s email at: LF@LFLegal.com or by calling toll-free to Linda’s office at 1-800-822-5000. Thanks in advance for your help, and wishing everyone a peaceful holiday season.

Feedback needed about the following:

(1) Accessible Credit Reports: Credit reports are available in Braille, Large Print, Audio CD, and on-line in an accessible format. Each person is entitled to three free credit reports per year, one from each national credit reporting company. If you haven’t received your free reports for this year, you can go on-line to www.annualcreditreport.com, or call toll free 877-322-8228 (you will be offered the chance to choose your format towards the end of the phone tree. More information available at: http://lflegal.com/2008/12/credit-announce/

(2) Tactile Keypads: Ten national retailers have signed agreements with ACB, CCB, AFB and BSCB to install and maintain tactile keypads so that customers with visual impairments can privately enter their PIN and other confidential information. The stores have trained staff on these issues, but if blind shoppers don’t use the devices, this training is often forgotten. If you are able in the next month or so to shop at any of the following retailers and can use a debit or other PIN-based card, we’d appreciate hearing from you: 7-Eleven, CVS, Target, Rite-Aid, RadioShack, Safeway, Trader Joe’s, Wal-Mart, Staples and Dollar General. (Please recognize that the full roll-out has not yet been completed at all these chains.)

When blind customers use a PIN-based card at these retailers it helps all of us to monitor the settlements reached as a result of Structured Negotiations and lets the companies know that these changes are important. A short summary of all the POS settlement agreements with links to the full agreement is available on Lainey’s website at http://lflegal.com/category/settlements/point-of-sale-settlements/. You can read all the press releases issued about these settlements at: http://lflegal.com/category/articles/settlement-agreement-press-releases/press-releases-point-of-sale/

(3) Accessible Websites: Blind community advocacy has been instrumental in making the internet more accessible to people with visual impairments. We are currently monitoring the following websites as a result of Structured Negotiations settlements, and would welcome feedback: Staples (www.staples.com); CVS (www.cvs.com); Bank of America (www.bankofamerica.com); Rite-Aid (www.riteaid.com) and RadioShack (www.radioshack.com). We are also interested in hearing about other websites, particularly health-care and health insurance related, with accessibility barriers.

(4) Talking ATMs: Ten years after the first Talking ATM was installed in the United States we continue to monitor Talking ATM progress. In particular, Bank of America, with the most Talking ATMs of any bank in the country has Talking ATMs at over 90% of its locations nationwide. Please let us know if you encounter any issues at any Bank of America Talking ATM, or with Talking ATMs at other institutions around the country.

(3) Accessible Pedestrian Signals in San Francisco As a result of the settlement with CCB, the LightHouse and the Independent Living Resource Center, San Francisco has installed Accessible Pedestrian Signals at close to 80 intersections throughout the City. Feedback on the devices is critical to ensuring effective implementation of the agreement.

Thanks for everyone’s continuing advocacy on these issues. Of course, if you have new issues about accessible information and technology you would like to bring to our attention, we’re always happy to hear about those too.

Lainey and Linda

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Lainey Feingold
Law Office of Lainey Feingold
http://LFLegal.com
510.548.5062
LF@LFLegal.com

Linda Dardarian
Goldstein, Demchak, Baller, Borgen & Dardarian
www.gdblegal.com
510.763.9800
LDardarian@gdblegal.com

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All in the PHAMALY

Friday, December 4th, 2009
Filed under: Uncategorized

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“The Physically Handicapped Actors and Musical Artists League (PHAMALY.org) is a theatre group and touring company that performs throughout the greater Denver area. PHAMALY was formed in 1989 when a group of former students of the Boettcher School in Denver, Colorado, grew frustrated with the lack of theatrical opportunities for people living with disabilities, and decided to create a theatre company that would provide individuals with disabilities the opportunity to perform. As a not-for-profit membership organization, PHAMALY is dedicated to producing traditional theatre in nontraditional ways.”

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Quoting a Nov. 22 blurb written by John Moore, the Denver Post’s Theater Critic:

Josh_Blue_small_photoThe cast of the handicapped theater company PHAMALY was surprised by the attendance last week of big-time comedian Josh Blue at a performance of their “Vox Phamalia: Re-Dux,” a night of collaborative comedy sketches about living with disabilities. Blue, who has cerebral palsy, was a winner of NBC’s “Last Comic Standing.”

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“Happy now?”: An honest and magnificent new essay about depression by Anna Quon

Thursday, November 26th, 2009
Filed under: ThemesThe UpDown ReportBooks & Book Reviews

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This year I fulfilled a lifelong dream of becoming a published novelist. The whole process of getting my book “Migration Songs” ready for print was a daunting one. My jewel of an editor saw me through the ups and downs, delivering endless pep talks to get me over the hurdles of insecurity. One minute I’d be fine, the next, sunk, but she always knew how to keep me moving from sunk to relieved. I felt like I never depended so much on another person for my mental health.

The novel is published and selling well. After a long lean stretch, I am bringing in some money from a project or two that I’ve been waiting on. And I have the support of my family and friends. But somehow I seem to be struggling with feelings of emptiness and futility.

On the surface, I have nothing to be depressed about. But does depression have to be “about” something?

We have been taught that the propensity for depression can be partly genetic and partly attributable to early life experiences, and it is well-recognized that the condition is not always situation-based. But for a long time I have believed that if I were able to change my thinking, I would be able to avoid depression.

I have consciously attempted to exchange negative thoughts for positive ones, successfully navigating a trip to Russia in 2006 on the basis of encouraging self-talk. It also helped that I was taking my medication as prescribed, as I continue to do today. But the feelings of spiritual loss have not abated.

I know I have been stressed-out lately, from dealing with certain people in my life, and because of money woes. I have also been feeling lost because of not having a clear work schedule. I shouldn’t be surprised… these are familiar feelings, and familiar scenarios. But I suppose I thought publishing my novel might just create a new kind of happiness that would not easily disperse.

Just as depression is not necessarily situation-based, neither is happiness. There may be nothing in the world that can make me happy, and only one person in the world who can—myself. And maybe, there will be times when even I, however much I work on thinking positively, may not be able to pull myself up out of the muck.

I once thought gratitude was the answer, and that if I could be grateful for what I have, the good things in my life, that I would magically be happier. It’s possible that I have forgotten to act on that lesson. But it’s also possible that there is no magic bullet, that there will be times when we just can’t seem to turn our dark moods around.

I’m going to keep trying the things that have worked in the past to increase my happiness, and the things that seem promising. But now that I am older, I am also prepared to live with a certain amount of darkness and pain.

The quest for happiness seemed like a worthwhile one, when I was young. It still seems reasonable to hope for happiness, but perhaps it is not so reasonable to expect feelings of happiness to be the inevitable and lasting conclusion of getting something “right” (whether it be thinking or attitude or being good or living a certain way).

Happiness may well be the by-product of seeing beauty in the world and other people. It may be something which must pass, the way anger and sadness do. It may be that some people have a natural talent for happiness, while others have to work at it. And it may be that our memories of happiness can feed our souls with as much light as actual moments of happiness do.

Migration_Songs_book_cover_Click_here_to_support_Anna_Quon_and_Irked_SIMULTANEOUSLY

I have been happy, and have no doubt that I will be again. I also know that the times in between will not kill me, and perhaps most importantly, that they are not a punishment for having done something wrong. I am open to the idea that I can change something in order to be happier but I will refuse to assign blame to myself if I don’t achieve the kind of happiness we all hope for. Happiness, after all, is not a test, but a state of being that I believe we are all born to recognize, enjoy and long for.

My editor probably doesn’t realize she was also a kind of happiness coach for me while I was revising my novel. I got by on her kind and enthusiastic words until the next wave of despair hit. Maybe I can learn to be my own shrink and cheerleader, or maybe I can simply take what comes and deal with it then.

I’ve never liked unhappiness, but maybe I can learn to endure it a little, while waiting for the next batch of happiness to wash up.

Like shells on the beach of my life.

Anna Quon is a Nova Scotia-based writer, and a much-cherished ongoing contributor to Irked Magazine. To purchase her critically-acclaimed debut novel click here.

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FIRST OF ITS KIND: a 24/7 web-based video game arcade…targeting disabled gamers!

Thursday, November 26th, 2009
Filed under: Uncategorized

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Dozens upon dozens of fun (and utterly addictive!) browser games—sorted by what devices are needed to play.

Categories include:

  • Mouse only
  • Keyboard only
  • Mouse and keyboard
  • One-switch
  • And More

Do you have a favorite browser-based flash game that you think deserves to be in AbleGamers’ arcade? Have you created your own title that you would like to see hosted on AbleGamers? Did they forget your favorite category? If so, they want to hear from you…send an e-mail to Webgames@AbleGamers.com – please be sure to include the name of the game, its URL, name of the author, and what accessibility features it has.

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Now…have fun at the AbleGamers Arcade!

Then…

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MARK YOUR CALENDARS: December 3rd, 2009

Thursday, November 26th, 2009
Filed under: Campaign Watch

Click the clock to learn more!

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[Via the Rolling Rains Report]

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You must watch this!

Thursday, November 26th, 2009
Filed under: Regular ContributorsLewis SchofieldThemesAuties & AspiesIrked Videos

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Here’s an AWESOME YouTube video—a Trent University-produced “vignette” starring the multiple-award-winning Mr. Lewis “Codeboy” Schofield:

Click to continue »

“Butterflies”: A beautiful poem (and painting!) by Donna Williams

Thursday, November 26th, 2009
Filed under: Regular ContributorsDonna WilliamsThemesAuties & Aspies

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By now, you all know Donna Williams. Here’s a poem called “Butterflies” that Donna wrote recently.

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if someone takes your disabilities and makes them your
gilded cage
then you take charge of your disabilities like never before
for they are your fallibility, the keys to your cage

a key you allowed someone else to call theirs
because they taught you this was love and caring
and in the light of day you realise it had nothing to do
with you

so you look in the mirror and say, wow, there’s a fool
and brush off the dust and say, ok, so the world is full of
fools so I’m in good company

and you look at your life and say, wow, there’s an island
but islands can build bridges

and you look at your smile and say
wow, I’d forgotten I could wake up with this

and you look at your time and say
you ain’t Florence Nightingale, so follow that smile
because a heart shouldn’t be heavy
it should be light
because a heavy heart will never fly
and butterflies can.

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Buy Donna’s gorgeous (and reasonably priced!) paintings

(Holiday tip: Nothing says "I love you" like original art!)

Check out Donna’s band

(With a name like Donna and The Aspinauts, how can you resist?)

Read Donna’s blog and visit her website

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If you live in Canada, you can support Donna and Irked SIMULTANEOUSLY:

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Read Irked posts tagged “poetry”
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